Resources for Children with Developmental Disabilities

Abuse Hotline: 1-800-352-6513

Family Support, Education and Advocacy
Disability Rights of WV - State designated protection and advocacy program for West Virginians with disabilities. DRWV provides consultation and education services on human and legal rights. Phone: (304) 346-0847
Website: https://www.drofwv.org/

West Virginia Family Support Program, Bureau for Behavioral Health - Statewide service to assist families in accessing child care, home modifications, transportation and other needed supports. The Family Support Program provides leadership in family-centered and family-driven service coordination and planning.
Phone: (304) 356-4811

West Virginia Parent Training and Information, Inc. - Consultation and support for parents of children with disabilities. Education and training services on special education policies, preparing for Individual Education Planning meetings and working collaboratively with school personnel. 
Phone: (304) 472-5697
Website: http://www.wvpti-inc.org/

Mountain State Parents, Children & Adolescent Network (MSPCAN) - Information and referral, emotional support and advocacy training for parents who have children with emotional, psychiatric and/or behavioral support needs.
Phone: (304) 428-0365
Website: www.mspcan.org

Early Intervention and Pre-school Services
Office of Maternal, Child and Family Health, WV Birth to Three - Statewide, locally administered program to provide supports and services that assist families in meeting the developmental needs of their infant or toddler with special needs. All children under the age of three who are found eligible by having a developmental delay, medical condition or multiple risk factors are entitled to services needed by them and their family as identified on their Individual Family Service Plan (IFSP). Program provides linkage to specialized therapy services in accordance with Part C of the Individuals with Disabilities Act.
Phone: (304) 558-5388

WV Department of Education, Division of Teaching and Learning - Assessment, early & elementary learning, special education, body safety and sexual abuse prevention toolkit.
Phone: (304) 558-8098
Website: https://wvde.us/teaching-learning/

WV Head Start Association - Lead state agency that oversees 24 Head Start programs in WV. Disability services including individualized programming, inclusive placement, dental, health, nutrition, developmental, family support and social services. Services available to children aged birth to 5 years in low income families.
Phone: (304) 872-0040
Website: http://www.wvheadstart.org/

Education (K-12)
West Virginia Department of Education, Office of Special Education - Responsible for ensuring that appropriate instruction and support are provided to students with disabilities. Statewide management, monitoring and technical support for special education programs. Administration of due process and mediation. Find information about Policy 2419 - Regulations for the Education of Exceptional Students and links to state and federal programs and resources on the website listed below.
Phone: (304) 558-2681
Website: http://wvde.state.wv.us/osp/

West Virginia Advisory Council for the Education of Exceptional Children - State advisory council as mandated under the Individuals with Disabilities Education Act (IDEA). The Council evaluates educational services in West Virginia and advises decision makers regarding the unmet needs of students with disabilities. The Council facilitates public meetings, develops reports, informational materials and works cooperatively with the WV Department of Education. The Council is composed of members appointed by the State Superintendent of Schools.
Website: https://wvde.state.wv.us/osp/advisorycouncil.html

WV Safe Schools HELPLINE - A 24- hour, toll-free number for all of West Virginia for confidentially reporting information that may be harmful to students, staff or school property. Threats of violence, use of weapons, sexual harassment, drug use or other harmful behavior should be reported.
Phone: 1-866-723-3982 (1-866-SAFEWVA)

Medicaid, Social Security and Other Entitlement Programs
Benefits Connection - An online resource to help you find federal benefits you may be eligible for in the United States.
Website: http://www.benefits.gov/

WV Bureau for Medical Services - State medical services program as mandated under the West Virginia Code and Social Security Act. Medicaid, behavioral health, home health and Children with Disabilities Community Service Program (CDCSP, formerly TEFRA).
Phone: (304) 558-1700
Website: https://dhhr.wv.gov/bms

WV Children’s Health Insurance Program (CHIP) - Free or low cost health plan for children from birth to age 19 in low income families. Insurance plan covers preventive care, immunizations, prescriptions, hospital visits, dental, vision and mental health services.
Phone: 1-877-982-2447 
Website: https://chip.wv.gov

Social Security Administration - Assistance and information about government benefits including Supplemental Security Income (SSI) and Social Security Disability (SSD) programs. Medicaid, CHIP and other health care services and resources.
Website: https://www.ssa.gov

WV Office of Maternal, Child and Family Health - Early and Periodic Screening Diagnosis and Treatment (EPSDT), care for pregnant women and newborns through the first year of life and children with chronic health conditions through a statewide clinical network. Assistance to families and their children (birth to 21) in accessing benefits and linkage to community services and resources.
Phone: (304) 558-5388 or (800) 624-9704
Website: www.wvdhhr.org/mcfh

Case Management and Community Services and Supports
Title XIX I/DD Home and Community-Based Waiver Program - Community service coordination, respite, residential habilitation, community residential habilitation, adult companion services, environmental accessibility adaptations, medical and psychological services, nursing, day habilitation, supported employment and transportation services. Information about application process and eligibility. Program manuals are available by contacting the local behavioral health center or the State Medicaid office.
Phone: Medicaid - (304) 558-1700   KEPRO - Administrative Services Organization - (304) 380-0617
Website: http://wvaso.kepro.com/programs/waiver-programs/intellectualdevelopmentaldisabilities-waiver/

WV Office of Social Services - Support services for children and families. Protective services, early intervention, foster care, specialized family care, child care, adoption, legal assistance and other supports and services
Phone: 304-558-0628
Website: https://dhhr.wv.gov/bcf

Bureau for Behavioral Health (DD Services)- Information and linkage to community case management, crisis services, family support, behavior support, and crisis intervention services.
Phone: (304) 356-4811
Website: https://dhhr.wv.gov/bhhf

Bureau for Behavioral Health - Office of Children, Youth, and Families - Administers programs to promote the behavioral health of children and youth in West Virginia communities through primary prevention and individualized services for mental health, substance use, and intellectual and developmental disabilities.
Phone: (304) 356-4811
Website: http://www.dhhr.wv.gov/bhhf/sections/programs/ProgramsPartnerships/ChildandAdolescent/Pages/ChildAdolescentBehavioralHealth.aspx

WV University Center for Excellence in Disabilities - Positive behavior support training; assistive technology for work, school, and home; specialized family care program; Work Incentive Planning & Assistance (WIPA); Traumatic Brain Injury (TBI); and various clinical services.
Phone: (304) 293-4692
Website: www.cedwvu.org

The WV Autism Training Center, Marshall University - College of Education and Human Services. Training, information and support for West Virginians with autism, their families, educators and others.
Phone: (304) 696-2332
Website: http://www.marshall.edu/atc/

WV Commission for the Deaf and Hard of Hearing - Programs for children and youth who are deaf or hard of hearing. Information and referral, family support, educational services, interpreter services and telephonic communication device loan program.
Phone: (304) 558-1675 (v/tty)   (304) 400-6959 (vp)

Assistive Technology
West Virginia Assistive Technology System (WVATS) - Information and referral, funding, training & education about AT devices and services.  Linkage to regional resource centers, lending libraries, and tech teams to assist individuals and families.  The WVATS is a project funded by the US Department of Education and coordinated by the WVU Center for Excellence in Disabilities.
Phone: (304) 293-4692
Website: www.cedwvu.org

ABLEDATA - Information, resources, research, support and training about assistive technology. Publications and consumer product reviews. Nationwide database.
Phone: 1-800-227-0216
Website: https://abledata.acl.gov

National Rehabilitation Information Center - Information and referral service including access to database of more than 70,000 assistive technology products and resources. Education about the Americans with Disabilities Act (ADA), advocacy projects and funding.
Phone: 1-800-346-2742
Website: www.naric.com

Recreation
West Virginia Division of Natural Resources - Information and assistance about accessible fishing, hunting and camping areas. Parks and forest information, hunting and fishing licenses for persons with disabilities. Fish stocking schedules, boating and other information.
Phone: (304) 558-2771
Website: http://www.wvdnr.gov

West Virginia Division of Tourism - Lodging, restaurants, attractions and events around the state. Accessibility information for public parks and recreation areas. Information about snow sports, white water rafting, biking and walking trails.
Phone: (304) 558-2200
Website: https://wvtourism.com

National Center on Accessibility - Organization committed to the full participation in parks, recreation and tourism by people with disabilities. Education, technical assistance, research and information and referral services. Information on key legislation including the Architectural Barriers Act, Rehabilitation Act, Americans with Disabilities Act (ADA) and the Uniform Federal Accessibility Standards.
Phone: (812) 856-4422
Website: www.ncaonline.org

The National Park Service - Federal bureau in The Department of the Interior responsible for protection of the national parks, monuments, rivers, reservations and other lands. Accessibility resources and assistance.
Phone: (202) 208-6843